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Even with
severe deformities, the heart and lungs have normal growth and
development. However it is documented that pectus deformities
affect heart and lung function (Haller and Loughlin, 2000,
Fonkalsord and Bustorff-Silva, 1999).
In pectus
excavatum, it is believed that the heart is displaced to the
left side of the chest, and there is a restriction of movement
of the heart and lungs. Patients complain of a decrease in
stamina and endurance during strenuous exercise (67%), frequent
respiratory infections (32%), chest pain (8%) and asthma (7%) (Fonkalsord
EW et al, 2000).
However
recognition of these symptoms remains controversial amongst
physicians as the evidence that exists does not reliably and
consistently demonstrate physiological limitations. Whilst the
physiological effects of pectus deformities remains debatable,
the psychological difficulties facing patients are evident and
yet there is sparse published information regarding these.
Some
patients are able to accept and live happily with the shape of
their chest; this is an important point as health care
professionals frequently assume a person with a physical
disfigurement has a negative image of himself (Anderson, 1982).
However many patients with pectus deformities are affected with
a negative self-image and low self-confidence. 'An unwillingness
to be seen without a shirt while swimming and participating in
sports or social activities,' is the most frequently quoted
complaint. In fact living with a pectus deformity affects all
areas of life (Table 1).
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Table
1: Reactions of patients 11 years and over with funnel
chest (Einsiedel & Clausner, 1999) |
High
degree of self-observation
High latent anxiety
Broken motivation
Feelings of stigmatisation
Timidity on social contact
Disturbed body image
Ambivalence
High latent aggressiveness
Inhibitions |
94%
82%
82%
78%
74%
72%
72%
66%
66% |
As
patients become older their psychological problems increase
(Table 2)
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Table
2: Reactions in patients aged 18-35 with funnel chest (Einsiedal
& Clausner, 1999) |
Excessive
and over extensive dependence on parental home
Alcohol and drug abuse
Absence from work
Suicidal tendencies
Psychosomatic symptom displacement
Generalised hypochondria |
Several
factors make the problems patients with pectus deformities face
and the way in which they cope with them unique.
- Age
Progressive growth spurts lead to a marked deformity by
adolescence. Wright (1960, as cited by Anderson, 1982))
identifies adolescence as being the most difficult age for
incurring a disfigurement. The importance of peer acceptance,
conformity to adolescent norms, interdependence from family
ties and an exaggerated perception of physique can be
problematic. Schilder (1935) describes body image as 'the
picture of our body which we form in our mind, that is to say
the way in which our body appears to ourselves'. Schilder also
states that body image is dynamic, that is, it changes during
the life cycle. During the teenage years the patient may be
acutely aware of the shape of their chest, however once they
have career, family, financial commitments, their attention
may not be so focused on their deformity.
- Body
area
Society, and the media in particular, places a high value on
physical appearance and physique, especially in teenagers.
Many adolescents with pectus deformity feel unable to expose
their chests by wearing low cut or open tops and often
disguise their deformity by wearing loose fitting clothes.
Schilder (1935) confirms that short-term alterations such as
changes of clothing can alter body image. Acceptance of a
disability or disfigurement is easier if the affected part of
the body is not central to a person's self-concept, i.e. if a
person valued intelligence, personality or relationships
rather than physical beauty they would be more likely to adapt
to the disability (Anderson, 1982).
-
Attitudes of others
Interpersonal relationships and attitudes of others also
affects a person's self-concept. People, particularly
adolescents, not only search for their identity from within
but also from others (Anderson, 1982). In turn, other people
use cues individuals give them, to help them define
themselves. The relationship with and attitude of persons
closest to the person with disability have particular
significance. Parental attitudes toward disability seem to be
a particularly important determiner for a child's adjustment
to disability (Pringle 1964, as cited by Anderson, 1982). Some
parents dismiss the pectus deformity as being part of the
person, for example colour of hair or eyes. However other
parents do seem to draw attention to the deformity and
heighten anxiety. The parents of young children can affect how
well their children cope with their deformity and may allow
avoidance of major surgery later in life.
References:
Anderson, F.J. (1982) Self-concept and coping in adolescents
with a physical disability. Issues in Mental Health Nursing
4: 257-274.
Einsiedel, E., Clausner, A.
(1999) Funnel chest. Psychological and psychosomatic aspects in
children, youngsters and young adults. Journal of
Cardiovascular Surgery 40: 5, 733-736
Fonkalsrud, E.W., Bustorff-Silva,
J. (1999) Repair of pectus excavatum and carinatum in adults.
American Journal of Surgery 177: 2, 121-124
Fonkalsrud, E.W., James, C.Y.,
Dunn, M.D., Atkinson, J.B. (2000) Repair of pectus excavatum
deformities: 30 years of experience with 375 patients. Annals
of Surgery 231: 3, 443-448
Haller, J.A., Loughlin, G.M.
(2000) Cardiorespiratory function is significantly improved
following corrective surgery for severe pectus excavatum –
Proposed treatment guidelines. Journal of Cardiovascular
Surgery 41: 1, 125-130
Schilder, P. (1935) Image and
Appearance of the Human Body Kegan Paul, London
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